It's more than a day, this is a way of life. Rare diseases impact lives.


by Susan D. Taylor

I write romance. There's always a HEA better known as the HAPPY EVER AFTER. Isn't there?



That's not the end of the story when it comes to reality. Life is composed of moments intersecting. Our life into the lives of others. Is the glass half empty or half full, or even there to begin with? Well that depends upon what we bring to the table. 

I could tell you a different type of story today. One with the components to fit the rare disorders without borders taking place right now. I'd rather tell you that many people are impacted by rare conditions as varied as the rainbow. Rare conditions may affect a person's body but not erode his or her spirit.

What makes us unique the human condition. What makes us strong is our will. What makes us victorious is our desire to seek a better way.

Today I celebrate what makes me different from you but what also makes us the same. We are the human spirit together.

If you've a story to tell, share your life. A word, a sentence,or a whole book. Take part in a life without borders.





  • February 28, 2013 marks the sixth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 24 European countries. 
  • On and around this day hundreds of patient organisations from more than 60 countries and regions worldwide are planning awareness-raising activities converging around the slogan “Rare Disorders without Borders”
  • Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand!

Find out how to Get involved.
Find out more about this year's theme.
- See more at: http://www.rarediseaseday.org/article/about-rare-disease-day#sthash.Yk4D8y8s.dpuf
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